Karthi Sivakumar, the Kollywood heartthrob has agreed to be the Cause Ambassador for Lysosomal Storage Disorder Support Society, a patients group for rare diseases. Lysosomal storage diseases ( LSD s) are a group of approximately 50 rare inherited metabolic disorders that result from defects in lysomal function. LSDs are a group of 40 rare metabolic disorders that affect one in 40,000 children.
Said Karthi at the press conference organized here, “I was distressed the first time I saw these kids suffering so much so early in their lives. It made me conscious about our and the society’s responsibilities towards them. We need proper awareness, diagnostic facilities and funds to support the treatments. I’ll be glad if my involvement could lead to a positive future for these kids.”
The program organized by the Lysosomal Storage Disorders Support Society (LSDSS) showed a heartening picture of about ten patients and their families. The excitement in the children to meet their role model and the hope on their parents’ faces to see the support from Karthi was visible.
Press Meet Video with Karthi , the Cause Ambassador for LSD